I had some autonomic testing done at UCLH at Queens Square London in August 2024. The aim of the testing was to work out what kind of dysautonomia I have. It’s been 7 years since I was diagnosed with dysautonomia, and I’ve been without any care for 5 of those years. So I was really […]
Dysautonomia Test Results: What They Mean for Me Read More »
Wowee. There was such a buzz of energy, support, understanding and positivity at the first ever conference for young people with Multiple Sclerosis! I am on a natural high, completely overwhelmed by our community. MS Sessions 2017, thank you! There’s so much content I need to share with you dear reader, but to kick things
MS Sessions 2017 Day 1 – a Young Person’s Conference Read More »
It’s Tuesday morning and the sun is shining. Life is so much sweeter when those rays hit the garden. I can become lost in mindfulness outside the confines of the house and escape from my fears, as well as all my To-do’s for the day. I can reframe my day with internal mantras (stolen off
Energy from Others Read More »
I’ve just been resting in bed this afternoon after overdoing it, yet again. You don’t need to chastise me, I have already done that to myself, and I am now being super-nice to yours truly – queue my favourite PJs, my favourite tea, and a promise to schedule another dinner with my friends as I’m missing
How to keep up to date with your favourite blogs in a single place Read More »
Happy MS Awareness Week one and all! In this video I focus on the invisible and hidden symptoms that MSers experience, in the hope of spreading awareness of these unknown and misunderstood but disabling parts of MS. I’d be so happy if you’d share this video with your friends, family and kindly strangers so that
MS Awareness Week 2016 – A Video Blog Read More »
This is a podcast I dictated off-the-cuff, with no notes or planning, whilst fatigued (full transcript is below). Call it an experiment with a dictaphone . I’d love to hear whether you think this kind of raw media is something you’d like more of – do comment at the end of this post and I shall
Audio Blog: Many Lemons’ (Groundhog) Fatigue Day Read More »
I’ve just had a chat with a lovely lady who is relatively new to her multiple sclerosis and was grappling with whether to call it quits and go home from work, or stick it out and ‘man-up’ to the tiredness she’s feeling at the tail-end of a cold. The cold symptoms had ended, she ‘just’
Am I being lazy? Or am I Tired Tired? Read More »
Hmm. How to get started. I’m one of those people who loves to read. LOVES to read. I’m like a sponge, taking in mounds of information and wanting more. And I love lists. Lists and spreadsheets and productivity tools, ahhhhh wonderful! Warm and fuzzy. My sister bought me an amazeballs book called Listography for Christmas. I can
