Using the Quick Start guide, you will install the apps and learn how to use them and the 2 different displays to track your pacing.
Getting started with the Garmin Long Covid pacing apps Read More »
After trying out the Long Covid pacing watchface last year, I ended up working with Jens, the creator, to try out his other Long Covid pacing apps and develop his instruction manual. It was an absolute pleasure to work with him and learn about his story. He has such grit and drive to help his
Manage your health condition with Garmin smartwatch Pacing Apps Read More »
In my last post I felt disappointed and alone again after my follow-up appointment. After waiting 5 months since being tested at UCLH in London, my follow up finally came round. But it was very brief, felt generic, and didn’t discuss what could be underlying my dysautonomia. There’s no treatment available for at least for
Unraveling Autoimmune and Gut Links to Dysautonomia Read More »
I had some autonomic testing done at UCLH at Queens Square London in August 2024. The aim of the testing was to work out what kind of dysautonomia I have. It’s been 7 years since I was diagnosed with dysautonomia, and I’ve been without any care for 5 of those years. So I was really
Dysautonomia Test Results: What They Mean for Me Read More »
After years of being told her distressing symptoms could only be psychological as her dysautonomia was believed to be controlled via her BP and heart rate, manylemons has found some emerging research suggesting that she may still have reduced cerebral blood flow. New diagnostic tools like Lumia’s device offer hope for better understanding and management of conditions that include POTS, M.E/CFS and Long Covid.
Dysautonomia, POTS, and the brain blood flow test – is this what we’ve been missing? Read More »
Learn how to use the Long COVID pacing app with the Garmin Vivoactive 5 watch, which helps manage energy for those with conditions like M.E/CFS and Long COVID. The post includes instructions for installing and configuring the app, focusing on tracking heart rate to prevent overexertion, and emphasizes the importance of pacing for better health management.
How to use a pacing app on a Garmin watch Read More »
As I got up this morning, my brain was on its High Curiosity setting. This is part and parcel of being me – my thoughts are overwhelmed by possibilities. But for 10 years, chronic illness research has been in the cross-hairs, a target that ebbs and flows for weeks at a time. It’s been 10
Chronic illness treatments – are we on our own? Read More »
What does homeworking mean to those of us with chronic illness or a disability? Before COVID, we couldn’t get a job. Now, we can.
COVID, Homeworking, and Ableism Read More »
Wowee. There was such a buzz of energy, support, understanding and positivity at the first ever conference for young people with Multiple Sclerosis! I am on a natural high, completely overwhelmed by our community. MS Sessions 2017, thank you! There’s so much content I need to share with you dear reader, but to kick things
MS Sessions 2017 Day 1 – a Young Person’s Conference Read More »
Today, I am troubled. I’m troubled by conversations I’ve had over the past year or two. They keep replaying in my head. They go something like this: “….so that’s why I am campaigning against the incredibly strict mobility criteria created for the Personal Independence Payment. If we are able to walk more than 20m, then we loose
Benefits and Disability: Have we got this all wrong? Read More »
