blog Archives - Many Lemons

Mel is sitting in front of a window with her legs up on an orange velvet chair, showing the academic paper to the camera. She's wearing a strappy black cotton dress with black and cream crochet on the top.

Dysautonomia, POTS, and the brain blood flow test – is this what we’ve been missing?

After years of being told her distressing symptoms could only be psychological as her dysautonomia was believed to be controlled via her BP and heart rate, manylemons has found some emerging research suggesting that she may still have reduced cerebral blood flow. New diagnostic tools like Lumia’s device offer hope for better understanding and management of conditions that include POTS, M.E/CFS and Long Covid.

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Photo of my Garmin vivoactive watch with ivory strap on my wrist. The watchface shows a big digital clock, date on the top left, remaining batter on top right. The Pacing Rate is displayed as a white thin bar below the digital clock. A red bar is superimposed on the pacing bar to indicate visually the rate, which is also written below the bar as '12% Very low'. To the right of the digital clock, the number 64 in red indicates my beart rate, heart rate is displayed in red as 64, and step count is displayed in blue as 420.

How to use a pacing app on a Garmin watch

blog / Many Lemons

Learn how to use the Long COVID pacing app with the Garmin Vivoactive 5 watch, which helps manage energy for those with conditions like M.E/CFS and Long COVID. The post includes instructions for installing and configuring the app, focusing on tracking heart rate to prevent overexertion, and emphasizes the importance of pacing for better health management.

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Chronic illness treatments – are we on our own?

blog / Many Lemons

As I got up this morning, my brain was on its High Curiosity setting. This is part and parcel of being me – my thoughts are overwhelmed by possibilities. But for 10 years, chronic illness research has been in the cross-hairs, a target that ebbs and flows for weeks at a time. It’s been 10

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Man working on a desk by a window in a living room. A child plays in a trike in the foreground, back to the camera. Their doll is on the floor.

COVID, Homeworking, and Ableism

1 Comment / blog / Many Lemons

What does homeworking mean to those of us with chronic illness or a disability? Before COVID, we couldn’t get a job. Now, we can.

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Conference for young people with Multiple Sclerosis

MS Sessions 2017 Day 1 – a Young Person’s Conference

6 Comments / blog / Many Lemons

Wowee. There was such a buzz of energy, support, understanding and positivity at the first ever conference for young people with Multiple Sclerosis! I am on a natural high, completely overwhelmed by our community. MS Sessions 2017, thank you! There’s so much content I need to share with you dear reader, but to kick things

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upside-down attitudes to disability benefits

Benefits and Disability: Have we got this all wrong?

6 Comments / blog / Many Lemons

Today, I am troubled. I’m troubled by conversations I’ve had over the past year or two. They keep replaying in my head. They go something like this: “….so that’s why I am campaigning against the incredibly strict mobility criteria created for the Personal Independence Payment. If we are able to walk more than 20m, then we loose

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Energy from Others

1 Comment / blog / Many Lemons

It’s Tuesday morning and the sun is shining. Life is so much sweeter when those rays hit the garden. I can become lost in mindfulness outside the confines of the house and escape from my fears, as well as all my To-do’s for the day. I can reframe my day with internal mantras (stolen off

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Spasticity Trial Now Recruiting 2016 – new drug VSN16

blog / Many Lemons

Would you be interested in being involved in a trial for treatment of spasticity? The trial uses a new drug called VSN16 and is recruiting right now, with recruitment running for the next few months until all spaces are filled. In order to be a potential candidate for the trial, you must: have spasticity – if you are unsure,

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Research Update: Yet another media frenzy over a Stem Cell ‘cure’? Or is this interesting?

1 Comment / blog / Many Lemons

You might have heard about this in the news (again!): Scientists close to a cure for MS. To be honest, I heard this on the radio this morning whilst waiting for a blood test in my GP surgery but disregarded it. I zoned out, not just because waiting for a blood test is far from my favourite pastime

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How to keep up to date with your favourite blogs in a single place

blog / Many Lemons

I’ve just been resting in bed this afternoon after overdoing it, yet again. You don’t need to chastise me, I have already done that to myself, and I am now being super-nice to yours truly – queue my favourite PJs, my favourite tea, and a promise to schedule another dinner with my friends as I’m missing

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