Many Lemons - Multiple Sclerosis help and aritcles

Mel is sitting in front of a window with her legs up on an orange velvet chair, showing the academic paper to the camera. She's wearing a strappy black cotton dress with black and cream crochet on the top.

Dysautonomia, POTS, and the brain blood flow test – is this what we’ve been missing?

After years of being told her distressing symptoms could only be psychological as her dysautonomia was believed to be controlled via her BP and heart rate, manylemons has found some emerging research suggesting that she may still have reduced cerebral blood flow. New diagnostic tools like Lumia’s device offer hope for better understanding and management of conditions that include POTS, M.E/CFS and Long Covid.

Dysautonomia, POTS, and the brain blood flow test – is this what we’ve been missing? Read More »

Photo of my Garmin vivoactive watch with ivory strap on my wrist. The watchface shows a big digital clock, date on the top left, remaining batter on top right. The Pacing Rate is displayed as a white thin bar below the digital clock. A red bar is superimposed on the pacing bar to indicate visually the rate, which is also written below the bar as '12% Very low'. To the right of the digital clock, the number 64 in red indicates my beart rate, heart rate is displayed in red as 64, and step count is displayed in blue as 420.

How to use a pacing app on a Garmin watch

blog / Many Lemons

Learn how to use the Long COVID pacing app with the Garmin Vivoactive 5 watch, which helps manage energy for those with conditions like M.E/CFS and Long COVID. The post includes instructions for installing and configuring the app, focusing on tracking heart rate to prevent overexertion, and emphasizes the importance of pacing for better health management.

How to use a pacing app on a Garmin watch Read More »

Chronic illness treatments – are we on our own?

blog / Many Lemons

As I got up this morning, my brain was on its High Curiosity setting. This is part and parcel of being me – my thoughts are overwhelmed by possibilities. But for 10 years, chronic illness research has been in the cross-hairs, a target that ebbs and flows for weeks at a time. It’s been 10

Chronic illness treatments – are we on our own? Read More »

Man working on a desk by a window in a living room. A child plays in a trike in the foreground, back to the camera. Their doll is on the floor.

COVID, Homeworking, and Ableism

1 Comment / blog / Many Lemons

What does homeworking mean to those of us with chronic illness or a disability? Before COVID, we couldn’t get a job. Now, we can.

COVID, Homeworking, and Ableism Read More »

participant holding an MS Society pen filling out an MS Society survey

The Hampshire MS survey results

hampshire MS survey / Many Lemons

In my last blog post, I introduced you to the MS Hampshire Collaborative Working Group and our survey. We wanted to know what level of care people with MS are getting from their local MS healthcare team. Does it depend on where you live? and what happens if you don’t have good access, or any

The Hampshire MS survey results Read More »

picture of a clipboard with a document titled 'Nurse'. Vials, a stethoscope and pills are placed on top.

What is the Hampshire MS Services survey?

hampshire MS survey / Many Lemons

Some of you may have wondered where on earth I’ve been for the past year and a half! Well, apart from getting a new diagnosis and learning ways to manage the condition (a future blog post), I’ve been heavily involved in a group called the MS Hampshire Collaborative Working Group and a survey of MS

What is the Hampshire MS Services survey? Read More »

a man sat on a chair holding an opened book above his head like an umbrella from falling PIP papers

Introduction to the PIP Online Bootcamp that tackles your PIP Application

6 Comments / benefits / Many Lemons

I have chatted to so many people about the mountain that is the PIP Application Form, otherwise known as the PIP2 form. I totally concur with this metaphor – it would be a mission to get through it if you were well, let alone if you have a disability or chronic health condition! So far,

Introduction to the PIP Online Bootcamp that tackles your PIP Application Read More »

Are you sure your future state pension is protected?

1 Comment / benefits / Many Lemons

If your disability or chronic illness means that you can’t work, you need to make sure you get enough national insurance (NI) credits. If you don’t, you might not qualify for a full state pension. How do you get them? Employment Support Allowance (ESA) or ‘new-style’ ESA. To get the full basic State Pension you

Are you sure your future state pension is protected? Read More »

Conference for young people with Multiple Sclerosis

MS Sessions 2017 Day 1 – a Young Person’s Conference

6 Comments / blog / Many Lemons

Wowee. There was such a buzz of energy, support, understanding and positivity at the first ever conference for young people with Multiple Sclerosis! I am on a natural high, completely overwhelmed by our community. MS Sessions 2017, thank you! There’s so much content I need to share with you dear reader, but to kick things

MS Sessions 2017 Day 1 – a Young Person’s Conference Read More »

upside-down attitudes to disability benefits

Benefits and Disability: Have we got this all wrong?

6 Comments / blog / Many Lemons

Today, I am troubled. I’m troubled by conversations I’ve had over the past year or two. They keep replaying in my head. They go something like this: “….so that’s why I am campaigning against the incredibly strict mobility criteria created for the Personal Independence Payment. If we are able to walk more than 20m, then we loose

Benefits and Disability: Have we got this all wrong? Read More »