Happy MS Awareness Week one and all! In this video I focus on the invisible and hidden symptoms that MSers experience, in the hope of spreading awareness of these unknown and misunderstood but disabling parts of MS.
I’d be so happy if you’d share this video with your friends, family and kindly strangers so that we can get word out and enable others to get a better understanding of the MS world.
I refer to some MS Awareness campaigns at the start of this video, which can be found here:
1,857 were surveyed by the MS Trust in Feb and March 2016. For people with progressive MS, only 55% had seen a neurologist in the past year, only 60% had seen an MS nurse, and even more worryingly, 12 per cent of people with progressive MS hadn’t seen any kind of specialist health professional in the last year. This falls a long way short of NICE’s MS Quality Standard, which recommends that all adults with MS are offered a comprehensive review at least once a year by a specialist health professional.
The report, which surveyed 1,780 people with MS in 2015, is a scary read. 42% of those who had a Personal Independence Payment (PIP) face-to-face assessment disagreed that the assessor considered their hidden symptoms and 50% of those who had a Work Capability Assessment (WCA) for Employment and Support Allowance (ESA) disagreed that hidden symptoms were considered.
MS Society Ambassador Trishna Bharadia will be posting videos and blogs all week here: https://www.facebook.com/trishnabharadia2015/
The campaign aims to encourage people with MS to ensure they are fully informed about new MS drugs, lifestyle interventions and services. 97%of MS nurses and neurologists believe there are people who could benefit from reconsidering how they manage their disease in light of how the MS landscape has evolved.
I also refer to the The Spoon Theory by Christine Miserandino to explain chronic fatigue.
As always, don’t forget to sign up via the ‘Notify Me’ button on the right hand side of this page if you’d like to receive an email when the next blog post is available. Rest-assured ManyLemons.com never spams.