Who am I?
I am a chronic illness advocate. I am blessed with a plethora of different chronic health conditions and I advocate for all! Multiple sclerosis has been my clingy and unwanted companion for 10+ years. I became a Zebra last year, diagnosed with the connective tissue condition Hypermobile Spectrum Disorder (HSD) and many of its associated conditions, after much self-led research and advocacy.
What makes Melly tick?
I love to learn, research, assimilate and communicate. I’m a Doctor of Physics, so it’s no surprise that I Heart Science, lapping the stuff up. I’ve taught and supported university students, run projects as an IBM team lead and project manager and worked as a technical content designer and content strategist. I love to share knowledge, create evidence, understand, inspire, represent, build relationships and listen.
Why does Melly blog?
I blog to empower others. I want to share all that I learn on this chronic illness journey, in the hope that some of the many different lemons that life gives us can perhaps be made less bitter….maybe even turned into a fizzy sweet refreshment.
I hope I can add some sparkles of clarity, ideas and encouragement to your own journey. I hope that I can learn about the Life Lemons and Lemonade from your world that you choose to share; that you can shape this endeavour. I hope I can be of service. I’m all ears.
What else does Melly do?
I have my fingers in all sorts of advocacy pies! If you think I can help you in any of my roles, do drop me a line at firstname.lastname@example.org:
- voluntary researcher, survey designer, analyst and project manager, currently working in the MS Hampshire Project Group, a collaborative group formed to improve local MS services in Hampshire. The group includes, among others, the MS Society.
- Part of a team of volunteers with MS who run Hampshire MS Support.
- Member of the European MS Platforms’ Young Person’s Network
- Shift.MS Champion
Licences and accreditations:
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